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Artículo de revisión

Avances en Enfermería [av.enferm. -Col-] 2017 ene-abr; 35(1): 63-76 Recibido: 11/10/2016 Aceptado: 04/04/2017

Suporte on-line às crianças e adolescentes doentes crônicos: uma revisão integrativa Verônica de Azevedo Mazza,* Débora de Sousa Lemos,** Sérgio Luídes Guimarães,*** Vanessa Ferreira de Lima,**** Jorge Vinícius Cestari Felix***** *Doutora em Enfermagem. Professora Adjunta, Departamento de Enfermagem, Universidade Federal do Paraná. Curitiba, Paraná, Brasil. E-mail: mazzas@ufpr.br **Mestranda em Genética, Universidade Federal do Paraná. Curitiba, Paraná, Brasil. E-mail:deboraslemos@gmail.com ***Mestrando em Enfermagem, Universidade Federal do Paraná. Curitiba, Paraná, Brasil. E-mail: selugui@hotmail.com ****Mestre em Enfermagem. Universidade Federal do Paraná. Curitiba, Paraná, Brasil. E-mail: vane_fdl@yahoo.com.br *****Doutor em Fisiologia Humana. Professor Adjunto, Departamento de Enfermagem, Universidade Federal do Paraná. Curitiba, Paraná, Brasil. E-mail: jvcfelix@hotmail.com

Resumo

Objetivo: Caracterizar a produção científica relacionada com o suporte on-line direcionado a crianças e adolescentes com doença crônica. Síntese do conteúdo: Trata-se de uma revisão integrativa. Realizouse uma busca no período de 2008 a 2017 nas bases de dados PubMed, Biblioteca Virtual em Saúde, Cumulative Index to Nursing and Allied Health Literature (cinahl) e ScienceDirect. Foram encontrados 30 artigos, organizados e caracterizados por título, autores, ano de publicação, país de proveniência, base de dados, tipo de estudo e objetivos. A temática reportou maior produção de conhecimento no período de 2012 a 2014. A tendência de pesquisa orientase em duas categorias: Avaliação das ferramentas de suporte on-line direcionadas a crianças e adolescentes com doença crônica e Percepção das famílias e profissionais de saúde sobre a usabilidade das ferramentas de suporte on-line direcionadas a crianças e adolescentes com doenças crônicas. Conclusão: O suporte on-line é um complemento importante às atividades de promoção à saúde para as famílias. É disponibilizado por meio de sites e programas on-line; apresenta potencialidades e fragilidades na usabilidade e constitui-se em um novo desafio para os profissionais de saúde.
Palavras chave: Informação de Saúde ao Consumidor/ Doença Crônica/ Criança/ Adolescente/ Família.
 

Resumen
Soporte en línea para niños y adolescentes con enfermedad crónica: una revisión integrativa

Objetivo: Caracterizar la producción científica relacionada con el soporte en línea dirigido a niños y adolescentes con enfermedad crónica. Síntesis del contenido: Se trata de una revisión integrativa. Se realizó una búsqueda que abarcó el período 2008-2017 en las bases de datos PubMed, Biblioteca Virtual em Saúde, Cumulative Index to Nursing and Allied Health Literature y ScienceDirect. Se encontraron 30 artículos, organizados y clasificados por título, autor, año de publicación, país de origen, base de datos, tipo de estudio y objetivos. Los hallazgos informaron sobre una mayor producción de conocimiento en el período 2012-2014. La tendencia de investigación se orientó de acuerdo a dos categorías: Evaluación de las herramientas de soporte en línea dirigidas a niños y adolescentes con enfermedad crónica y La percepción de las familias y los profesionales de la salud sobre el uso de las herramientas de soporte en línea dirigidas a niños y adolescentes con enfermedad crónica. Conclusión: El soporte en línea es un complemento importante de las actividades de promoción de la salud para las familias. Está disponible en sitios web y en programas en línea; tiene fortalezas y debilidades en cuanto al uso y constituye un nuevo desafío para los profesionales de la salud.
Palabras clave: Información de Salud al Consumidor/ Enfermedad Crónica/ Niño/ Adolescente/ Familia.
 

Abstract
Online support for chronically ill children and adolescents: an integrative review

Objective: To characterize scientific production related to online support targeted at chronically ill children, and adolescents. Content synthesis: This is an integrative review. A literature search was performed, from 2008 to 2017, using databases PubMed, Biblioteca Virtual em Saúde, Cumulative Index to Nursing and Allied Health Literature, and ScienceDirect. Thirty articles were found, arranged and sorted by title, author, year of publication, country of origin, database, type of study, and objectives. Findings reported a greater knowledge generation during the period from 2012 to 2014. Trend in research was focused in accordance with two categories: Online support tools assessment aimed at chronically ill children and adolescents and Perception of families and health professionals about usability of online support tools aimed at chronically ill children, and adolescents. Conclusion: Online support is a vital complement to health promotion activities for families. It is available on websites and online programs; moreover, it has strengths and weaknesses in usability, and represents a new challenge for health professionals.
Key-words: Consumer Health Information/ Chronic Disease/ Child/ Adolescent/ Family.
 

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